Injection Worth Rs 16 Crore Needed To Save Life Of 10 Months Old Ayansh, Family Seeks Help From People And Government

Patna: 10-month-old Ayansh is suffering from such a rare disease, which happens to one in lakhs. 

Alok Kumar Singh and Neha Singh’s son Ayansh, reside in state capital’s Roopaspur Rukanpura. Ayansh is suffering from a rare disease named SMA (Spinal Muscular Atrophy type-1). This disease was detected when he was two months old.

The organs of a child suffering from SMA gradually stop working. A part of Ayansh’s neck has stopped working. Even after 10 months, Ayansh’s condition is like a newborn.

 Ayansh’s mother Neha Singh says, “When we came to know about this disease, we could not believe it.” Neha is treating the child at the National Institute of Mental Health and Neuroscience, Bengaluru.

Maximum age 2 years without treatment

According to Neha Singh, doctors say that a child suffering from this disease can live a maximum of two years. Gradually the hands and feet will stop working, breathing will also become difficult.

 Ayansh’s parents are doing everything possible to save their child. But the injection for treatment is so expensive that they can’t afford it and have sought help from people and government.

One injection cost Rs 16 crore

An injection called Zolgensma is needed for the treatment of spinal muscular atrophy (SMA). The cost of one injection is Rs 16 crore. It is not available in India, it has to be imported from America. 

Neha Singh has started crowdfunding and has also sought help from people through social media. She appealed to Chief Minister Nitish Kumar and Health Minister Mangal Pandey and says that Ayansh is the first child of Bihar who has got such a rare disease. If CM Nitish Kumar and the government help, the son’s life can be saved.

According to the child’s father, a similar case had come up earlier in Mumbai. People had helped a lot in that case and the child was treated. After the injection with the help of people, the health of the child is better.

You can also help Ayansh

If you want to hwlp/support to save Ayansh, you can send money to his father’s account in Central Bank of India in the name of Ayansh Singh. You can send any amount. Name- Aayansh singh, Account No.- 5121176175, IFSC-CBIN0282384, Bank Name- Central Bank of India.